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Raise Awareness. Share Your #myBehcetsJourney Infographic Today.

Thank you for using the #myBehcetsJourney Infographic generator! Click the buttons below to share your personalized infographic with your social networks and/or save the image.

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For additional educational resources, support, community information, news and more on Behçet's Disease, visit the patient advocacy websites at the links below.

• American Behçet's Disease Association • Vasculitis Foundation

Create Your Own #myBehcetsJourney Infographic

Behçet's Disease is a rare, chronic, inflammatory condition that affects multiple systems in the body and can manifest itself in a variety of symptoms, including oral ulcers, genital ulcers, ocular disease, skin lesions and joint pain. As such, each person's experience with the disease is different – from diagnosis to impact on daily life to hopes for the future.

OUR GOAL: Help the world understand what it is like to live with or care for someone living with Behçet's Disease.

This Behçet's Awareness Day (May 20), Amgen is partnering with the American Behçet's Disease Association and the Vasculitis Foundation to shine a spotlight on the personal experiences of people impacted by Behçet's Disease.

HELP RAISE AWARENESS:

1

Complete the questionnaire below to create your personalized infographic to tell your journey as a patient or caregiver of a loved one with the disease. There are two versions of the questionnaire – one for patients and one for caregivers.

2

Download and share your infographic on social media using #myBehcetsJourney.

Participation is voluntary. By completing the questionnaire, you are agreeing to participate in the #myBehcetsJourney infographic initiative, which will use your responses to create a personalized infographic. No personal information (e.g., name, email) is requested to develop an infographic. All information collected is anonymous and individual responses will not be shared outside of Amgen, the American Behçet's Disease Association and the Vasculitis Foundation. A summary of aggregate data (compiled from all participants) may be shared at a later date.

#myBehcetsJourney

I am a person living with Behçet's Disease.

1)  How long have you been living with the disease?

2) How long did it take you to receive a diagnosis?

3) How many doctors did you visit before you received your diagnosis?

4) What part of your life has been impacted most following your diagnosis?

5) Who do you depend on the most when your symptoms flare up?

6) At times, living with Behçet's Disease feels ...

7) ... but it has also taught me to be ...

8) In the future, I hope ...

#myBehcetsJourney

I am a caregiver or loved one of someone living with Behcet's Disease

1)  How long have you been caring for a loved one with Behcet's Disease?

2) How long did it take for your loved one to receive a diagnosis?

3) What is one thing you wish you knew about Behcet's Disease when your loved one was diagnosed / when you found out about their diagnosis?

4) How do you cope with the stress of caring for a loved one with a chronic disease?

5) At times, caring for a loved one with Behcet's Disease feels ...

6) ... but it has also taught me to be ...

7) In the future, I hope ...